As most of my faithful followers know, we spent the summer in Michigan near my son, Tom, and his family. We really appreciated being in a campground near them because Wiley had surgery to replace the deep brain stimulator that had been removed the year before due to infection. The DBS team at the University of Michigan was fantastic. Dr. Patil, the neurosurgeon, and Dr. Chou, the neurologist, and the team that included a social worker, neuropsychologist, physical therapist, nurses and support staff worked to make the whole experience as pleasant as possible. Everything went flawlessly, and we're happy to report that Wiley is getting better every day, with no sign of infection. A big "thank you" to Tom and Kristin for all their support while we were there. The whole experience was so much less stressful because we were able to have some fun with them in between appointments. And, of course, spending time with the grandkids is always special.
When we got back to Florida in October, we discovered that the battery in the older DBS (Wiley has two, one to control the left side of his body and the other to control the right side) was going bad. So we had that battery replaced by our Florida team, Dr. Razak (neurosurgeon) and Dr. Gonzalez (neurologist). We're still in the process of having adjustments to achieve the best possible control with the fewest side effects. It's a process that takes some time, but the results are worth it. I have "before" and "after" videos, but my internet connection is too slow to allow me to post them.
Here are a few of my favorite moments from this past summer:
Tom Coaching Margo's Soccer Team |
Margo Crocheting |
Tawas Point Lighthouse |
We enjoyed Thanksgiving at Wiley's sister's home and had a great Christmas with Wiley's parents. Mag and Wiley gave us a screened gazebo that has been in use every day since we got it. I haven't downloaded my Christmas pics yet, so you'll just have to take my word for it that a good time was had by all.
Now that we're up to date, I'll share our big news with you. We're going to New Zealand in February! That should make for some pretty good blogs, don't you think? My son, Mark, and his family live in Wellington on the North Island. In addition to some sightseeing and visiting with them, we've rented a camper and will tour the South Island for a week. We'll also stop in Los Angeles for a very quick visit with my sister, Jan, and her family. So, stay tuned for more of Joyce and Wiley's Great Adventure.
1 comment:
It was great to see you! Love, Tom and the girls.
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